A Big Thank You to everyone that attended our September 16th Kick-off Event at the Boat Basin in New York City. We had over 50 attendees and raised over $2,000 after all costs.

As of November 20, 2005 personal donations along with our first fundraiser has brought in over $4,000!

On a sad note, it was recently announced that You Tube star, Caleb Bratayley passed away at the young age of 13 from Hypertrophic Cardiomyopathy, HCM.

According to the family’s Instagram account officiallybratayley “The doctor confirmed today that Caleb passed away from a heart condition called Hypertrophic Cardiomyopathy that went undetected in his yearly checkups. Caleb didn’t have any symptoms so the doctor said there was nothing we could have done differently. The girls’ hearts were just recently checked and thankfully look the way they should right now. The sadness of losing someone you love is unimaginable. Thank you to everyone who has reached out, your kindness and support continues to help our family. We miss our baked potato everyday. #calebratelife”

Without speaking to Caleb’s family members (we reached out through comments on the family’s Facebook account, but we are having trouble finding contact information) we do not know if Caleb was screened with an echo-cardiogram prior to his unexpected passing.

By raising awareness of HCM, we hope that anyone who has a family history of HCM or of sudden cardiac death under the age of 40, or anyone who has symptoms of HCM is able to receive an echo-cardiogram.